Browsing HMS Scholarly Articles by Author "Cacioppo, Cara N."
Now showing items 1-2 of 2
-
Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study
Cacioppo, Cara N.; Chandler, Ariel E.; Towne, Meghan C.; Beggs, Alan H.; Holm, Ingrid A. (Public Library of Science, 2016)Purpose Much information on parental perspectives on the return of individual research results (IRR) in pediatric genomic research is based on hypothetical rather than actual IRR. Our aim was to understand how the expected ... -
Family Health History Reporting is Sensitive to Small Changes in Wording
Conway-Pearson, Liam S.; Christensen, Kurt D.; Savage, Sarah K.; Huntington, Noelle L.; Weitzman, Elissa R.; Ziniel, Sonja I.; Bacon, Phoebe; Cacioppo, Cara N.; Green, Robert C.; Holm, Ingrid A. (2016)Purpose Family health history is often collected through single-item queries that ask patients whether or not their family members are affected by certain conditions. The specific wording of these queries may affect what ...