Now showing items 1-3 of 3

    • The Changing Landscape of Molecular Diagnostic Testing: Implications for Academic Medical Centers 

      Rehm, Heidi L.; Hynes, Elizabeth; Funke, Birgit H. (MDPI, 2016)
      Over the last decade, the field of molecular diagnostics has undergone tremendous transformation, catalyzed by the clinical implementation of next generation sequencing (NGS). As technical capabilities are enhanced and ...
    • Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research 

      Boutin, Natalie T.; Mathieu, Kathleen; Hoffnagle, Alison G.; Allen, Nicole L.; Castro, Victor M.; Morash, Megan; O’Rourke, P. Pearl; Hohmann, Elizabeth L.; Herring, Neil; Bry, Lynn; Slaugenhaupt, Susan A.; Karlson, Elizabeth W.; Weiss, Scott T.; Smoller, Jordan W. (MDPI, 2016)
      The purpose of this study is to characterize the potential benefits and challenges of electronic informed consent (eIC) as a strategy for rapidly expanding the reach of large biobanks while reducing costs and potentially ...
    • A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States 

      Garrison, Nanibaa' A.; Sathe, Nila A.; Antommaria, Armand H. Matheny; Holm, Ingrid A.; Sanderson, Saskia C.; Smith, Maureen E.; McPheeters, Melissa L.; Clayton, Ellen W. (Nature Publishing Group, 2016)
      Purpose: In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data ...