Janssens, A. Cecile J. W.Kraft, Phillip2013-04-252012Janssens, A. Cecile J. W. and Peter Kraft. 2012. Research conducted using data obtained through online communities: ethical implications of methodological limitations. PLoS Medicine 9(10): e1001328.1549-12771549-1676http://nrs.harvard.edu/urn-3:HUL.InstRepos:10587978An Essay by A. Cecile Janssens and Peter Kraft discusses the limitations inherent in research involving collection of self-reported data by self-selected participants, and makes proposals for upfront communication of such limitations to study participants.en-USMedicineClinical GeneticsPersonalized MedicineClinical Research DesignCohort StudiesCross-Sectional StudiesEpidemiologyLongitudinal StudiesObservational StudiesProspective StudiesSurvey ResearchPublic HealthScience PolicyBioethicsJournal Article2013-04-2510.1371/journal.pmed.1001328