Out-of-pocket Medical Costs for Parents with Children with Down Syndrome in the United States

Kageleiry, AndrewSamuelson, DavidDuh, MeiLefebvre, PatrickDerSarkissian, MaralCampbell, JohnSkotko, Brian2017-11-062015Kageleiry, Andrew, David Samuelson, Mei Sheng Duh, Patrick Lefebvre, Maral DerSarkissian, John Y. Campbell, and Brian G. Skotko. 2015. Out-of-pocket Medical Costs for Parents with Children with Down Syndrome in the United States. ISPOR 20th Annual International Meeting, Philadelphia, PA, May 16-20, 2015: PHS67.http://nrs.harvard.edu/urn-3:HUL.InstRepos:34331450Financial considerations may impact the pregnancy decisions of expectant parents who receive a positive prenatal screening test result for Down syndrome (DS). This study estimates the out-of-pocket health care costs for parents associated with raising a child with DS between birth and 18 years of age, using private U.S. health insurance data.en-USOut-of-pocket Medical Costs for Parents with Children with Down Syndrome in the United StatesConference Paper2016-05-1220152017-11-06