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Roadmap for a precision-medicine initiative in the Nordic region

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2019-04-15

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Springer Science and Business Media LLC
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Njølstad, Pål Rasmus, Ole Andreas Andreassen, Søren Brunak, Anders D. Børglum, Joakim Dillner, Tõnu Esko, Paul W. Franks, Nelson Freimer, Leif Groop, Hakon Heimer, David M. Hougaard, Eivind Hovig, Kristian Hveem, Anu Jalanko, Jaakko Kaprio, Gun Peggy Knudsen, Mads Melbye, Andres Metspalu, Preben Bo Mortensen, Juni Palmgren, Aarno Palotie, Wenche Reed, Hreinn Stefánsson, Nathan O. Stitziel, Patrick F. Sullivan, Unnur Thorsteinsdóttir, Marc Vaudel, Eero Vuorio, Thomas Werge, Camilla Stoltenberg & Kári Stefánsson. 2019. Roadmap for a Precision-medicine Initiative in the Nordic Region. Nature Genetics 51, no. 6: 924-30.

Abstract

The Nordic region, comprised here primarily of Denmark, Estonia, Finland, Iceland, Norway, and Sweden, has many of the characteristics necessary to lead the world in genome-based precision medicine. These include egalitarian and universal health-care, expertly-curated patient and population registries, biobanks, large population-based prospective cohorts linked to registries and biobanks, and a widely embraced sense of social responsibility that has motivated public engagement in biomedical research. Now is an opportune time to organize scientists in the Nordic region, together with other stakeholders such as patient representatives, governments, pharmaceutical companies, academic institutions, and funding agencies, to initiate a Nordic Precision Medicine Initiative. We present a roadmap for how this can be done. The Initiative will facilitate research, clinical trials, and knowledge transfer to meet many regional and global health challenges.

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Genetics

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